Brooke Eby, ALS Advocate Who Founded ALStogether, Dies at 37
- 🔑 Brooke Eby, the ALS advocate who founded the ALStogether peer-support community, died at 37. The ALS Network announced her death on Thursday, Oct. 1, 2026, and outlets report she died that day. Today reported the cause as complications of ALS, attributing it to the ALS Network.
- Eby was born Dec. 22, 1988, in Potomac, Maryland, graduated from Lehigh University in 2010, and worked at Salesforce. Published profiles say she first noticed symptoms in 2018, at age 29, and was diagnosed with ALS in March 2022, at 33, after which she began sharing her experience online.
- She built a large audience as @limpbroozkit, with more than 500,000 followers across platforms, according to local Maryland coverage in October 2026. Her style paired humor with candor, and she described levity as her superpower while telling her story to a national audience.
- Eby founded ALStogether, a Slack-based peer-support community for people living with ALS and their caregivers. It had more than 1,700 members as of the ALS Network’s Mar. 26, 2026 announcement, and was folded into the ALS Network that year. Reports say she helped raise more than $1 million for ALS causes.
- The ALS Network named Eby its 2026 Dean and Kathleen Rasmussen Advocate of the Year, announcing the honor on Mar. 26, 2026; the organization says she received it in June 2026. She also launched an adaptive clothing line, B.E. Collection, with Silverts, with proceeds going to Team Gleason.
- As of Oct. 2, 2026, we have not found a family statement, a formal obituary listing survivors, or memorial service and donation instructions. The ALS Network’s remembrance page does not list them either. We will update this page if the family or the organization shares details.
Brooke Eby, the ALS advocate and social media creator who founded the ALStogether peer-support community, has died at 37. The ALS Network announced her death on Thursday, Oct. 1, 2026, and outlets report she died that day. This page sticks to what has been publicly announced and what she shared herself.
Who was Brooke Eby?
Brooke Eby was an ALS advocate and creator, known online as @limpbroozkit, who documented life with the disease through humor and built a community for others facing it. She was born Dec. 22, 1988, in Potomac, Maryland, graduated from Lehigh University in 2010, and worked at Salesforce. Published profiles say she first noticed symptoms in 2018, at age 29, and was diagnosed with ALS in March 2022, at 33.
After her diagnosis she began sharing her experience publicly. Local Maryland coverage in October 2026 put her following at more than 500,000 across platforms. She described levity as her superpower, and her approach mixed candor with comedy rather than a solemn tone.
When and how did Brooke Eby die?
The ALS Network announced Eby’s death on Thursday, Oct. 1, 2026, and outlets report she died that day at age 37. Today reported the cause as complications of ALS, also known as Lou Gehrig’s disease, attributing it to the ALS Network. We are not reporting anything further about the circumstances of her death.
The ALS Network’s remembrance page, posted Oct. 1, describes her as an extraordinary advocate, storyteller, community builder and friend. The page itself does not state a date of death or a cause.
Why do some articles show Oct. 2?
Those are publication dates, not dates of death. Today’s article and the Baltimore Sun’s are time-stamped Oct. 2, 2026, the morning after the ALS Network’s announcement. Local Maryland coverage and entertainment-news coverage that give a date of death say Oct. 1.
What did the ALS Network and others say about her?
ALS Network President and CEO Sheri Strahl said Eby “changed the way people see ALS,” and also changed how people living with ALS find and support one another. Strahl added that Eby brought humor into difficult moments and spoke with fearless honesty, and said her impact would live on in the people she reached and the community she created.
Salesforce CEO Marc Benioff also paid tribute in a post on X, as reported by People, describing her as a warrior with an unusually positive attitude.
What was ALStogether?
ALStogether is the Slack-based peer-support community Eby founded to connect people living with ALS and their caregivers. The ALS Network’s Mar. 26, 2026 announcement put its membership at more than 1,700. The ALS Network says it began integrating ALStogether into the organization in 2026 to expand its resources, reach and long-term impact.
What awards and projects is Eby known for?
Eby was named the ALS Network’s 2026 Dean and Kathleen Rasmussen Advocate of the Year, an honor announced Mar. 26, 2026. The organization says she received it in June 2026; its announcement tied the award to the Champions for Cures and Care gala on June 20, 2026, in San Francisco. In that announcement, she said she had chosen to get loud and irreverent about ALS.
Other work includes B.E. Collection, an adaptive clothing line made with Silverts, with proceeds going to Team Gleason, according to Today. Reports say she helped raise more than $1 million for ALS causes. Her alma mater’s news site also noted that she threw the ceremonial first pitch at a Baltimore Orioles ALS Awareness Night in June 2023.
What did Eby share publicly about her health?
Eby chose to share her experience in her own posts, and everything here comes from what she said publicly. In a TikTok in early September 2026, she said people could no longer understand her speech. Coverage of her earlier posts says she reported a steep decline in breathing capacity by June 2025, later had a feeding tube placed, and began having speech and swallowing symptoms in January 2026.
She also wrote that she hoped her TikTok presence would live on as a visual diary for anyone newly diagnosed who needs a guide.
What is ALS?
ALS, short for amyotrophic lateral sclerosis and also called Lou Gehrig’s disease, is a progressive neurological disease. We keep medical detail to that one line. For questions about the disease or its care, we would point readers to a clinician or an established ALS organization; this page is not medical advice.
What has not been announced yet?
As of Oct. 2, 2026, we have not found a family statement, a formal obituary listing survivors, or any memorial service or donation-in-lieu instructions. The ALS Network’s remembrance page does not list them either. We are not naming private family members.
Brooke Eby leaves a record that she largely wrote herself, in her posts, in the community she started and in the people who found one another through it. We will update this page if the family or the ALS Network shares service or memorial details.
How we verified this
- Primary source. We read the ALS Network’s own remembrance page (dated Oct. 1, 2026) in full. It carries the organization’s announcement and its CEO’s statement, but it does not itself state a date of death or a cause, so we attribute both to the outlets that report them.
- Cross-checking the death. The death, her age and the cause were checked against network news coverage (cause: complications of ALS, attributed to the ALS Network), regional Maryland coverage (died Oct. 1) and entertainment-news coverage of her own posts (announcement Oct. 1). One regional newspaper’s article was only partly readable behind a paywall, and two other outlets could not be opened; none was used for a detail we could not confirm elsewhere.
- Date of death. Several outlets say Oct. 1, 2026. The network-news and regional-newspaper articles carry Oct. 2 publication stamps and do not state a date of death in the text we could read, so we wrote that the ALS Network announced Oct. 1 and outlets report she died that day. No time of day is given anywhere on this page.
- Figures that conflict. Followers: more than 500,000 across platforms (regional coverage, Oct. 2026) versus about 100,000 on TikTok and 85,000 on Instagram (her alma mater’s news site, Nov. 2023); we used the 2026 figure with attribution. Fundraising: nearly $1 million (2023) versus more than $1 million (ALS Network announcement of Mar. 26, 2026, and regional coverage); we used the later figure. ALStogether’s 1,700-plus members is dated to the Mar. 26, 2026 announcement.
- Award dates. Both dates are correct: the ALS Network announced the Advocate of the Year award on Mar. 26, 2026, and says she received it in June 2026.
- Job title. Sources give different Salesforce titles, so we say only that she worked at Salesforce.
- Tribute quoted indirectly. The Salesforce CEO’s tribute on X was reported with matching wording by two outlets; we did not open the original post and paraphrased it.
- Health details. Anything about her condition comes from her own public posts as summarized by news coverage, and is written as what she said. We add no speculation about her final days.
- Left out. We did not name private family members and excluded unsourced claims from low-quality sites, some of which contain errors, including a wrong age.
- Still unresolved at write time. As of Oct. 2, 2026, no family statement, formal obituary, memorial service details or donation instructions had been published that we could find. No betting odds, spreads, or win-probability models appear anywhere on this page, and it contains no forecasts or medical claims.